WHAT TOPICS WILL WE DISCUSS?

 

A conversation with Julinka's mother, Petra Trnková (recording from 10/4/2022 here, Czech only)
 

Shared personal experience of a mother who lost her child. 
 

- what helped her cope with this event and keep the family going
- how to communicate with a person who loses their child and what is important at the moment

- what sometimes not to say and how to support parents who have experienced the loss of a child

- how to create a so-called safe zone for releasing emotions

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A conversation with social worker, Jitka Jůzová (record from 11/10/2022 here, Czech only)

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An introduction to social work and its role in supporting caregivers of a terminally ill child.

- what a social worker can do for you and where to find one
- where you can get the information you need to provide care for your child at home

- what you are entitled to, how to compensate financial expenses and where to turn in these cases
- who all gets involved in caring for thempowerful child – family, authorities, employer, school, hospital, general practitioner, health insurance company, and other services, e.g. respite care or home care

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A conversation with crisis interventionist and carer, Eva Pospíchalová (record from 25/10/2022 here, Czech only)

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Presentation of the possibilities of support and guidance through a difficult period of life associated with the child's serious illness.

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- how specifically the relief service of the House for Julia works

- what are the needs of parents (or other close persons) who care for a seriously ill child for a long time

- how to manage a crisis situation associated with the deterioration of the child's health

- how you can support yourself and when to seek professional help

- where to look for motivation and get energy that you haven't been getting for a long time

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The Conversations project was supported by: